Explanation of the Huntington's Disease Team Roles

Welcome to the Huntington's Disease Society of America Center of Excellence at Nebraska Medicine. This is a specialized Huntington’s Disease Multi-Disciplinary clinic. What that means to you is this clinic has a team of skilled and dedicated doctors, nurses, and clinicians who specialize in your healthcare needs. Our team consist of neurologists specialized in Huntington’s Disease, a psychiatrist, a neuropsychologist, a nutritionist, a genetic counselor, a social worker, and a nurse. A typical first visit will consist of meeting your healthcare team individually and being provided with educational resources. 

Movement Disorder Neurologist

A neurologist is a doctor who specializes in treating diseases of the nervous system. Because the nervous system is complex, a neurologist may specialize in a specific area, like movement disorders. Movement disorders are associated with changes in the brain cells that help us move. They will assess, manage, and treat; they are your “team leader”. 

What is a Psychiatrist?

A psychiatrist is a doctor who specializes in the diagnosis, treatment, and prevention of mental health and emotional problems. They address conditions that may be caused by or associated with Huntington’s Disease, such as depression, anxiety, behavioral difficulties, obsessions, compulsions.

What is a Neuropsychologist and What Do They Do?

A neuropsychologist is a psychologist who specializes in understanding the relationship between the brain and behavior. The neuropsychological evaluation involves an interview and the administration of tests. The tests are typically pencil and paper type tests. A complete evaluation generally takes between 2 and 5 hours to complete.

What is a Genetic Counselor?

A genetic counselor is a healthcare professional with specialized training in medical genetics and counseling.  Adults who have a family member with Huntington’s disease but do not yet have symptoms of the disease can determine if they have the genetic mutation by undergoing predictive genetic testing with a simple blood test.  The decision whether to have predictive testing for Huntington’s disease is extremely personal, and it’s important to take your time and make an informed choice. A genetic counselor can help you talk through all the factors to consider.

Where is the Clinic Located?

We are located at 4239 Farnam St. 1st floor, Suite 105 . The Clarkson Doctors Building South. Get directions.