It was only about 30 years ago when someone with significant congenital heart disease wouldn’t have been expected to live to see their 20s. But thanks to better medical care, there are far more adults living with congenital heart disease than ever before.

This article, shared with permission from Omaha World-Herald medical reporter Julie Anderson, details how cardiologist Angela Yetman, MD, has done extensive detective work to find nearly 100 family members with the same condition.

Everyone has connective tissue that holds your body together and supports its various structures. Unfortunately, some conditions attack this vital tissue. One of these conditions is Marfan syndrome.